We're so thankful for this, and I thought I would share it with our friends/family that may not be around all the time so you can keep up with the progress as well. Here's the link to the website that he personalized for our family and their team: http://www.info-komen.org/site/TR?pg=fund&fr_id=1120&pxfid=124070 You should check it out and sign the guestbook, we obviously don't expect a donation from everyone at this time of year, especially, I just thought it was a cool thing to share!
Life. Sometimes it's beautiful, sometimes it's ugly & you've just gotta get through the day. Sit back, relax & laugh about someone else's life for a change!
Monday, December 21, 2009
A worthy cause :)
We're so thankful for this, and I thought I would share it with our friends/family that may not be around all the time so you can keep up with the progress as well. Here's the link to the website that he personalized for our family and their team: http://www.info-komen.org/site/TR?pg=fund&fr_id=1120&pxfid=124070 You should check it out and sign the guestbook, we obviously don't expect a donation from everyone at this time of year, especially, I just thought it was a cool thing to share!
Friday, December 18, 2009
So much for the weekend
Oh well, at least the shopping is done, I was planning to go to a Christmas party we have with some friends every year on Saturday, and I guess I'll have to send the family but sit this one out. :-(
I have to give myself Neupagen shots for 4 days then I'll have more bloodwork to see where I'm at. On the days the shot is given, I'm supposed to stay away from crowds (especially children). After those 4 days, we'll do more if I need to so I can make sure the wbc count is high enough to go to Tennessee to visit my in-laws for Christmas. Then on the 28th it's Chemo #5.
Thursday, December 17, 2009
I'm gonna lose it!
I had a regular monthly check-up with her to just make sure everything was going ok on Monday, and she was way more interested in telling me stories and talking about family than actually talking about what I was there for...ya know, breast cancer, chemo, etc?!
On her way out the door I said "You know I haven't had bloodwork done since last Tuesday, that's almost a week, and even though my white blood cell count was very high then, with me you never know". She gets a confused look and says "Well, how do you feel?" I tell her that I feel great, but even when my wbc count bottoms out I feel pretty good. She says to go ahead and have blood drawn at her office and they will let me know the results.
On my way out I confirm with the receptionist that I need the results because if my count is low, I need to be able to avoid going out into public. She assures me that they understand and if for some reason I don't hear from them, "give it a couple of days and call us, don't worry about that".
Well, today is Thursday...3 days later, and I called a little while ago to check on the results MYSELF (like I should have to do that) and the nurse very casually informs me that my wbc count was 1.3 . "OK, so it was 1.3 on MONDAY!" I say and then ask what I need to do to get some Neupagen to build the wbc count up. She tries unsucessfully to call the Dr. and then comes back with no real instructions. REALLY GUYS?!
I am so very upset with them that I haven't yet decided what to do about it. I mean, why as the patient did I have to make that call, why as the patient did I have to suggest to the Dr. that she do bloodwork, and why haven't they called me back yet?
I have been out in public shopping and running around (along with the rest of America) all week, not thinking I had a problem at all. This is a critical issue for my health, and she doesn't seem to take it seriously in the least! If I were to God forbid get sick, I could end up hospitalized, and any infection that a normal person could take meds and get over could become life threatening for me.
I have already decided to switch Oncologists after my last 4 chemo treatments are over, because this is something I will have to be vigilant about for the rest of my life. I will have to have tests and screens for cancer off and on throughout my lifetime, and I need a doctor whose hands I trust my life. She has just proven to me, yet again, that it's not hers.
This greatly upsets me because I really felt that she was the right doctor for me from the beginning, and now all that is being questioned. I guess I'll just have to give it to God...again! This is something I struggle with daily, and I know it's part of what this experience is going to show me.
Sorry for the crazy lady rant, I just had to get it out and now I don't feel quite as ready to burst!
Wednesday, December 16, 2009
Crafts Galore!
Friday, December 11, 2009
Much needed FUN!
We then pushed our luck and tried to do a little shopping with 3 kids running on VERY little sleep and that was a cluster to say the least! We did, however buy some adorable boots, and although the fellow shoppers in the store probably wanted to kill us, we considered it a successful shopping trip!
Later that evening was the SEC Championship game, and let me just say...Roll Tide!!!
On Sunday we headed back home & it was a little sad for all of us, but especially our girls. They are so close, and it was a sad tearful goodbye for them :(
Our friends also have this really old barn across the street from their house that I couldn't wait to get pictures of. I finally did on the way out of town, so they're not as good as I would've liked, but at least the itch was scratched. My hubby knew I would've been upset about it for a while if I didn't get to at least snap a few pics, so he practically pushed me out of the car on the way home to "Take some pictures of the barn!" He knows me too well!
It was so nice to spend a relaxing weekend with friends (and their precious family) that was mostly cancer-free...other than the scare of my wig blowing off a few times from the crazy wind. How awful would that be?! We haven't had time to just sit and catch up in a long time, and it was really good medicine for all of us I think.
Thanks guys for being such good hosts, and putting up with our family for the weekend, we love y'all!
Thursday, December 10, 2009
Big girl hair cut!
Our sweet friend cuts our hair, and she knows how much my little one likes her hair "flatted" or straight. She decided to flat it first so we could see the true length since her hair is SO very curly! I couldn't believe my eyes when she was done...look how long it was!
It's still fairly thin, so we decided to cut it just below her shoulders, and then she layered it a little so the curls will fall nicely. She LOVED the straight look she had for 24 hours, but she's really liking the shorter curls, too. I'm not sure why she wanted it short, but she insisted, and it's very cute if I do say so myself :)
Such a slacker!
I just realized today how long it had been since I made a blog post! I've been so caught up in getting everything decorated and keeping it somewhat clean...who am I kidding? That I've totally neglected my blog!
Well, this past Monday was Chemo #4. Nothing spectacular to report other than I'm half way through, and that was the last of the "bad" drugs, so maybe it will be better for the last 4!
We took advantage of the extra week I had between treatments last time to put up the Christmas trees, and even got the outside of the house decorated some because I just love me some Christmas lights!!! I say we, but what I mean is ME...Yep, no help whatsoever from the hubby! Whatever, I'll just make him do the least fun un-decorating part! ;)
Here's a pic of the little one with her tree. She loves having her own ornaments on her tree and takes the ornament placement very seriously!
My mother-in-law was so nice and gave us one of her 'skinny trees' this year, so we didn't even get the monster tree we usually have out of the attic.